Introduction. The diagnosis and subsequent management of sarcoma often requires multiple separate attendances to Hospital and often a prolonged inpatient stay post surgery. Previous research has focused on the physical and emotional aspects of a diagnosis of cancer, but little has been discussed regarding the financial costs incurred by patients and their families. Methods. 40 patients treated at our Unit were contacted and were questioned about the financial costs relating to their diagnosis and treatment. The questionnaire included distance travelled to the Unit, mode of transport, who patients were accompanied by, costs whilst at the Hospital e.g. car parking, days off work and impact on employment and career progression. Results. Patients travelled an average of 88 miles for a return journey to the Unit. They attended an average of 18 out-patient consultations during their treatment. The estimated cost of travel to consultations alone, including parking was £785. The mean length of in-patient stay was 5.4 days. Relatives visited on most days of the in-patient stay with further associated costs. 18 patients felt that progression at work i.e. promotion had been affected by their diagnosis. A further 12 patients had lost / given up their job as a result of the disease. Discussion. The diagnosis, and the subsequent treatment of, Sarcoma has a profound effect on patients. The financial strain incurred by multiple clinic visits, in-patient stays and associated costs adds to the pressure of the diagnosis. Efforts need to be made to ensure that patients are seen in a truly coordinated manner and more use made of new
As tumours of bone and soft tissue are rare, multicentre prospective collaboration is essential for meaningful research and evidence-based advances in patient care. The aim of this study was to identify barriers and facilitators encountered in large-scale collaborative research by orthopaedic oncological surgeons involved or interested in prospective multicentre collaboration. All surgeons who were involved, or had expressed an interest, in the ongoing Prophylactic Antibiotic Regimens in Tumour Surgery (PARITY) trial were invited to participate in a focus group to discuss their experiences with collaborative research in this area. The discussion was digitally recorded, transcribed and anonymised. The transcript was analysed qualitatively, using an analytic approach which aims to organise the data in the language of the participants with little theoretical interpretation.Objectives
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